Apert Syndrome (10) Cleft Lip & Palate (30) Craniosynostosis (2) Langer-Giedion Syndrome (2) Parry-Rombergs Syndrome (4) Smith-Magenis Syndrome@ (3) Stickler's Syndrome (4) Treacher Collins Syndrome (4) 1. AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. 2. Acne Support Group - Information and support on acne, including top ten tips, beauty tips and problems. 3. Beneath the Surface - Offers support and understanding to individuals of facial difference. 4. Birthmark Support Group - From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. 5. Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. 6. Changing Faces - UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them. 7. Children's Craniofacial Association - Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. 8. Crouzon's Bridge of Hope Foundation - Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome. 9. Foundation for Faces of Children - Expert information for families and health care professionals about craniofacial conditions. 10. Let's Face It USA - A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles. 11. Support Works Online - Resources to find or form support groups related to facial difference. Information on medical research. 12. The Craniofacial Society of Great Britain and Ireland - Information about the society, which is a multidisciplinary forum for specialists. 13. The DRM WebWatcher: Facial Differences - A Disability Resources monthly guide to online resources about craniofacial differences. 14. The New Face Foundation - A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate. 15. The Personal Side of Craniofacial Differences - Personal accounts of living with craniofacial conditions, and related webrings. 16. XP Support Group - UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions. 17. FACES: The National Craniofacial Association - Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization. 18. John Hopkins Center for Craniofacial Development and Disorders - Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center. 19. Moebius Syndrome - Moebius Syndrome support, information and resource site. 20. Sincere Meditations - Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.

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