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1. |
Anencephaly Awareness
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Information including possible causes and future prevention. Also a personal story.
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Anencephaly Information
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Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
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Anencephaly Net
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An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
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Anencephaly Support Foundation
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Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.
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Carrying to Term Pages
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Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.
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Faith Aminah Shabazz
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Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.
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Moral Principles Concerning Infants with Anencephaly
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Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
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8. |
Mourning Mommies
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Online support group for women who have lost babies to anencephaly.
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NINDS: Anencephaly
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Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
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Yahoo! Groups: Anencephaly
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Global Health Network support group open to anyone affected by anencephaly.
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Yahoo! Groups: Anencephaly Blessings from Above
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A Christian pro-life support group for parents those carrying to term.
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12. |
Anencephaly - Jessicas Journey
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A parent's personal experience, relating her daughter's story.
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