Broadly speaking, the word "ataxia" simply means unsteadiness and clumsiness, and has been given to the condition because those are usually the earliest symptoms. As the disorder progresses, people with ataxia usually lose the ability to walk, and can become totally disabled, having to depend on others for their care. This is because ataxia destroys both nerve and muscle cells. Vision (and in ... [MORE] Friedreich's Ataxia@ (13) 1. A-T Children's Project - A clearinghouse for ataxia-telangiectasia information, including disease information, scientific research, clinical and family support, and fundraising. 2. ADCA-Association of The Netherlands NEW! - With information about the association, contact details for other ataxia associations. [Dutch and English] 3. Ataxia Telangiectasia Society - Details about the organization which is committed to helping, supporting and advising families affected by AT. Includes research, support and awareness. 4. Cathryn Dianne Achilles - Cathryn has Ataxia-telangiectasia. This is her story, along with some pictures. 5. Centre for the Research and Rehabilitation of the Hereditary Ataxias NEW! - CIRAH is a project developed by the Cuban Revolution to carry out research on ataxia and help people suffering from this illness. 6. Cerebellar Ataxia Investigative Webpage - Offers information and a request for same via email. 7. National Ataxia Foundation - Information about and support for people with ataxia. 8. Ataxia UK - Charity offering help and support for people suffering from Friedreich’s and cerebellar ataxia. Information on the disease, treatment and research. 9. International Ataxia Awareness Day NEW! - Using the IAAD on 25th September to promote knowledge of ataxia and related diseases.

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