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1. |
A Diary about Marfan's
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Marfan's patients diary of the diseases events in her life. Includes a list of links.
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2. |
Polish Marfan Association
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General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
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3. |
American Heart Association - Marfan's Syndrome
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Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
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4. |
Canadian Marfan Association
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Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
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5. |
Central Ohio Marfan Support Group
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Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
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6. |
Guide to Marfans Syndrome
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Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
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7. |
International Federation of Marfan Syndrome Organizations
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A global information center providing links to Organizations around the world.
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8. |
Life and Issues of Marfan's Syndrome
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Personal site by which describes the pathology and gives a bit of advice.
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9. |
Living With Marfans
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This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
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10. |
Marfan Association UK
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The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
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11. |
Marfan Support and Information
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Support group in New South Wales, Australia.
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12. |
Marfan Syndrome
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Article from eMedicine.
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13. |
Marfan Syndrome
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Online chapter from The Merck Manual of Medical Information.
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14. |
Marfan Syndrome
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A Question-Answer format page of information.
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15. |
Marfan Syndrome
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Comprehensive guide to this connective tissue disease.
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16. |
Marfan Syndrome Forum
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Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
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17. |
Marfan Syndrome: Does Diet Play a Role
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Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
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18. |
Marfan-List
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Information about an e-mail mailing list. Also includes links to other online support groups.
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19. |
Marfans Research Foundation
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Irish charity with information on fund raising activities and the condition.
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20. |
MFS Type 1 Fibrillin Gene
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A comprehensive site including major resources listed as well as genetic information.
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21. |
National Marfan Foundation
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Providing accurate and timely information about the disorder to patients, family members and physicians.
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22. |
Questions and Answers about Marfan Syndrome
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From the National Institutes of Health.
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23. |
Slovak Marfan Association
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The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
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24. |
South African Marfan Syndrome Organisation
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Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
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25. |
Swedish Marfan Association
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Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
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26. |
The Mystery of Akhenaten: Genetics or Aesthetics?
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A history of the pharoah along with theories applied to what he may have had, including Marfan's.
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27. |
Theresa E. Pageau - A Memorial Tribute
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A tribute to a patient with this disease accompanied by information and links related to donating.
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28. |
Univ. of Washington - Marfan Syndrome
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What the disease is and includes the impacts on daily life.
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29. |
Yahoo! Support Group
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Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
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