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These groups, communities, or meeting places provide an opportunity for people with a common experience (such as a condition or disease, or a care-giving role) to share their concerns, and to seek and offer information and advice.
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1. |
East Kent Lymphoedema Support Group
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Provides a basic description of the condition, treatments available, and a message board.
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2. |
Greater Boston Lymphedema Network
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Created to supply personal support and share information.
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Lymphoedema Support Network
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Organized by and for patients with primary and secondary lymphoedema in the UK, with a monthly newsletter, and membership details.
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4. |
All About Lymphanagiectasia
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Forum for patients, and for parents of children who suffer from all forms of this condition.
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Children with Lymphedema
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Online group for parents, families, and caregivers. Provides help with coping, diagnosis, treatment, and prognosis.
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Lipedema Lipodema Lipoedema
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Web-based group for patients to share experiences, explore treatment options, and coping skills.
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7. |
Lymphatic Disorders
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Forum for discussing the condition and treatments.
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8. |
Lymphedema People
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Offers a forum, articles, and patient accounts.
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