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1. |
Adam Day
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Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund.
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Alex and Matt Pearl
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Personal stories of two children fighting Fanconi Anemia.
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B Positive, Inc.
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A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
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Family Village: Fanconi Anemia
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Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
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5. |
Fanconi Anaemia
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A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
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6. |
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
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Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
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7. |
Fanconi Anemia Research Fund
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To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
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8. |
Fanconi Canada
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Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
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Hope for Henry
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This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
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Blackfan
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Yahoo list group for Diamond Black Fan Anemia sufferers.
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11. |
Fanconi
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Yahoo list group for sufferers of this condition.
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12. |
Fanconi Anemia
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Discusses the genetics of this condition and treatment options.
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13. |
Fanconi Anemia Web
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An informational site for this disorder.
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14. |
Kaps for Kendall
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In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers.
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